This is a post I always hoped I’d never have to write, but you don’t always get what you want out of life. Two of the tumour sites in Alex’s brain have grown. I’ll pause for a second so you […] ↓ Read the rest of this entry…
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According to the Bureau of Meteorology, Adelaide, on the 24th of January, had the highest recorded temperature since their record keeping began. The highest temperature recorded was at Parafield Airport, where it reached 47.7 degrees Celsius. In Adelaide CBD it […] ↓ Read the rest of this entry…
Comments Off on Can you hear me?
We’ve made jokes from time to time about how Alex seems to get sick on or around significant dates and anniversaries… Well Phil and I just celebrated our 13th wedding anniversary Guess what happened. In his defence, this time it […] ↓ Read the rest of this entry…
Comments Off on A slight hiccough…
I thought kids were supposed to be teenagers before they started giving their parents issues to which their parents could sigh, roll their eyes, and say ‘hormones’. I guess Alex is just getting an early start. On Saturday we gave […] ↓ Read the rest of this entry…
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Two weeks after surgery Alex started back on the growth hormone (GH) injections at the reduced dose of .3 of a ml daily, since he seemed to be sensitive to GH the endocrine team decided that it would be better […] ↓ Read the rest of this entry…
Comments Off on A Unique Individual
The next chapter in our medical adventures started on Thursday the 13th of September with an appointment for Jenny with nurse Kate of the endocrine department. I was to be taught how to administer an injection of growth hormone, and […] ↓ Read the rest of this entry…
Comments Off on New chapters and big milestones
We make jokes from time to time about the different departments at the hospital, how one hand doesn’t know what the other is doing etc, but this Thursday was a rare example of the opposite happening. We had an ENT […] ↓ Read the rest of this entry…
Comments Off on Stars do align….
In the main, like most parents I suspect, I find the looming prospect of school holidays somewhat daunting. Two long weeks with children who seem to have been given a challenge to see how much of a mess they can […] ↓ Read the rest of this entry…
Comments Off on School Holidays? When?
On Thursday Alex had an appointment at the hospital, but it was the start of a new chapter in our journey, we were starting with our fourth department at WCH – endocrinology. It’s a somewhat blurred starting line, since technically […] ↓ Read the rest of this entry…
Comments Off on Same Rollercoaster, Different Theme Park
So in case you missed the news, the papers, social media or generally the buzz around town (I’m still blown away to say this…) but Alex was the toast of the town on Friday and what a day it was! […] ↓ Read the rest of this entry…
Comments Off on The Best Firefighter Ever!!
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