In the weeks since our last post Alex has had 4 ECG’s and 4 Echo cardiograms – all of which showed normal function – fortnightly blood tests and many checkups. We have had oncology, endocrine, and cardiology checkups, ophthalmology and […] ↓ Read the rest of this entry…
First an apology. We haven’t posted an update since January and so much has happened. Our only excuse is we were too busy adapting to all the changes to find the time to write about them. So, what has happened? […] ↓ Read the rest of this entry…
The Friday before Christmas I was up at our local shops doing our grocery shopping when I got a phone call. Dr Beck, Alex’s oncologist, was calling to ask if Alex was able to take tablets or if he needed […] ↓ Read the rest of this entry…
Thursday the 29th of October was MRI day. Thursday the 29th of October was also SASVI school photo day. We weren’t due in DOSA (Day Of Surgery Admission) until 11am so Alex went to school as usual, and once I […] ↓ Read the rest of this entry…
In the past when Alex had a medical emergency he had a habit of having them on major holidays or days of significance to us. Apparently he is yet to break this habit, though his aim was a bit off […] ↓ Read the rest of this entry…
This is a post I always hoped I’d never have to write, but you don’t always get what you want out of life. Two of the tumour sites in Alex’s brain have grown. I’ll pause for a second so you […] ↓ Read the rest of this entry…
According to the Bureau of Meteorology, Adelaide, on the 24th of January, had the highest recorded temperature since their record keeping began. The highest temperature recorded was at Parafield Airport, where it reached 47.7 degrees Celsius. In Adelaide CBD it […] ↓ Read the rest of this entry…
We’ve made jokes from time to time about how Alex seems to get sick on or around significant dates and anniversaries… Well Phil and I just celebrated our 13th wedding anniversary Guess what happened. In his defence, this time it […] ↓ Read the rest of this entry…
I thought kids were supposed to be teenagers before they started giving their parents issues to which their parents could sigh, roll their eyes, and say ‘hormones’. I guess Alex is just getting an early start. On Saturday we gave […] ↓ Read the rest of this entry…
Two weeks after surgery Alex started back on the growth hormone (GH) injections at the reduced dose of .3 of a ml daily, since he seemed to be sensitive to GH the endocrine team decided that it would be better […] ↓ Read the rest of this entry…
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